Acute Disseminated Encephalomyelitis (ADEM) Support Group
Acute disseminated encephalomyelitis (ADEM) is a neurological condition characterized by a brief but intense attack of inflammation in the brain and spinal cord that damages myelin, the protective covering of nerve fibers. Acute disseminated encephalomyelitis usually occurs following a viral infection but may appear following vaccination, bacterial or parasitic infection, or even appear spontaneously. As it involves autoimmune demyelination, it is similar to multiple sclerosis.
Getting Started in Discourse
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Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.
Bens Friends Communities
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Newbies Guide to ADEM
Included in this category are resources written by members by members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more information
Medical Forms and Trackers
General Discussion about ADEM
About my 10 year old son
Hot Weather/Sun an issue?
What's New With You?
Tell us how you are doing and what you have been up to lately.
Update on Robert
Update on my son's status
Having a rough day? We're here to listen.
Suicide Hotline Numbers
Friends and Family Affected by ADEM
A.D.E.M. who knew?
Welcome to Complementary Therapies! This is the place to discuss the array of complementary healing modalities that many of us rely on to help us live healthier lives. Whether you're looking to do more to promote your own health while undergoing medical treatment, or are waiting to get medical treatment and are looking to do what you can to feel better in the meantime, this is the place to post your questions and information. We will discuss everything from acupuncture and chiropractic to nourishing our bodies, minds, and spirits. This is the place to discuss healing modalities that can complement medical treatment
Supplements, Shakes, Powders, Pills and Snake Oils
Hyperbaric O2 Chamber and Acupuncture for ADEM / TM
Anyone else considering diet and lifestyle changes?
Prayer and healing Energy Requests
A place to request prayers and healing energy for yourself or others, from our community of caring, supportive friends, for any issue(s) we deal with.
News From Bens Friends
Events of interest to ADEM Patients and our Communities. Just email to have the staff add your event.
This is our new chat. Just reply. If you want to go to a private chat simply click on the mebers avatar and start messaging. You can invite others to join you. For now we don't have a "who's online" box but hope to add that feature soon!
Recommend a Doctor, Therapist, or Clinic (Positive
Want to recommend a doctor, therapist, or clinic? Positive review only, please.
Memory loss and bad hearing related to ADEM?
In need of a ADEM specialist
Doctors and Hospitals for ADEM Patients
Discussion about this site, its organization, how it works, and how we can improve it.
Ingrid in hospital
Into the Wild - Rise (Eddie Vedder)
Acute Disseminated Encephalomyelitis (ADEM)
Understanding the Immunopathology of Central Nervous System Diseases