Acute Disseminated Encephalomyelitis (ADEM) Support Group

Category Topics

New User Help

Are you a new user?
Don’t worry we will guide you through the following videos.

Welcome New Members

Acute disseminated encephalomyelitis (ADEM) is a neurological condition characterized by a brief but intense attack of inflammation in the brain and spinal cord that damages myelin, the protective covering of nerve fibers. Acute disseminated encephalomyelitis usually occurs following a viral infection but may appear following vaccination, bacterial or parasitic infection, or even appear spontaneously. As it involves autoimmune demyelination, it is similar to multiple sclerosis.

General Discussion

Join the ADEM discussion forum for patients, friends and families affected with acute disseminated encephalomyelitis.
We love to hear you stories and information about treatments, symptoms and side effects of ADEM.

Newbies Guide to ADEM

Resources about ADEM are written by members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more information about acute disseminated encephalomyelitis.

What's New With You?

Tell us how you are doing and what you have been up to lately.

Emotional Support

Having a rough day? We're here to listen.

Complementary Therapies

Welcome to Complementary Therapies! This is the place to discuss the array of complementary healing modalities that many of us rely on to help us live healthier lives. Whether you’re looking to do more to promote your own health while undergoing medical treatment, or are waiting to get medical treatment, this is the place to post your questions and information. We will discuss everything from acupuncture and chiropractic to nourishing our bodies, minds, and spirits.

Prayer and healing Energy Requests

A place to request prayers and healing energy for yourself or others, from our community of caring, supportive friends, for any issue(s) we deal with.


News From Bens Friends

Ben's Friends

Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.


Events of interest to ADEM Patients and our Communities. Just email to have the staff add your event.


Hurray, we can chat! This is a private chat only visible to registered users on Living with ADEM. Please use your screen name when you chat

Recommend a Doctor, Therapist, or Clinic (Positive

Want to recommend a doctor, therapist, or clinic? Positive review only, please.

Site Feedback

Discussion about this site, its organization, how it works, and how we can improve it.


This is an archive of the Blogs from the old site. Blogging is not an available feature on discourse.


FAQ about the ADEM Community