My 6 year old nephew was just diagnosed yesterday. I am a RN but I work in Labor & Delivery, so don’t know a whole lot about this.
He had the flu and strep about 6 weeks ago. Rediagnosed with strep about 3 weeks ago. He seemed to be better.
Friday --fever, painful swollowing and (+) strep test and started on stronger antibiotics.
Saturday–complaining of headache, feeling tired and having nausea and vomiting(not unusual at all with strep and antibiotics)
Sunday afternoon–became lethargic and wasn’t making sense when he was talking and taken to ER
At ER–started on IV, given IV antibiotics and chest Xray was negative, spinal tap done. no bacterial meningitis on tap. My brother called me and I said to get him transferred to Childrens Hospital Dallas. Neurologically continued to deteriorate.
Transferred-CT done and negative. Monitored overnight with plan for MRI in the morning. He was still breathing on his own, but almost unresponsive.
Monday morning–MRI done with some abnormalities seen, They were thinking maybe viral meningitis. About 1 hour later got a text saying ADEM.
He was then intubated so they could place a central line and do MRI of spine. By evening, he was intubated, IV steroids started and plamsa exchange was started.
Tuesday(today) MRI done. He started having seizures. They were going to try to extubate him, not sure if they still are. IV immunoglobulin was to be started today, not sure if it was.
My brother is really discouraged by the seizures. And I know he is just plain exhausted, so I haven’t gotten a whole lot of information today.
I feel like he was diagnosed fairly quickly. And he is at a great hospital. His treatment seems to be what is recommended.
Any additional info would be greatly appreciated.