I am writing this to get support and maybe this will help someone else. My son is 10 yo. he has an IEP as he is just a slow learner and I wasn t going to turn down the extra help that he needed. everything else was normal. he does get once in a blue moon a touch of asthma during the change to cold weather, like December/January but not chronic and he seems to have grown out of it. which is why this is such a surprise to me.
Sept 9, we had a heat alert day and so he went to school. I got a call that he was having trouble breathing. I left work and took one look at him and ran to THE ER. then he started shaking legs and hands and crying. (no tears) rushed him back to ER like 3 times. was told by hospital and neurologist that they were panic attacks. at this point I am seeing his attacks getting worst. a stare like he was far away. just crying "screaming help me". he says he see's the nurse and doctors from our FIRST ER visit on the walls and something about blood but soon these episodes (I call them) he wouldn't remember having them. then it happened at school and so principal gave me a choice to get him to a certain hospital that has a pediatric psychiatrist. I went to one. 7 hours of waiting he saw nothing and sent me home. everyone telling me to put him in a mental hospital as in patient. my heart felt like it stopped beating. even family members were leaning to get mental help.
I was about to sign him in when I decided to go first for his yearly pediatric doctor to get him a flu shot and check up. IT HAPPENED. THE EPISODE HAPPENED RIGHT IN HIS OFFICE. his doctor video taped it and sent it to his people at the hospital. I recvd a call that I needed to rush my son to this hospital ASAP. my son tested positive to Mycoplasma (so asthma may not have been asthma) then an M.R.I. and several tests. a mass was detected on his brain frontal lobe. A.D.E.M. was a possibility but not sure as usually there are more then one lesion. but after brain biopsy. he was diagnosed as the A.D.E.M. started steroids while still taking them at home, he is also on meds to help with the 'episodes". they still don't know if they are related!!!! need follow-up up with neurology and now seeing psychologist. I don't know what I am doing as I know if me and his pediatrician hadn't fought for him. this could have been fatal. the big question. what do I do now???/