I was diagnosed with ADEM in August 2012. I had just given birth to my baby 3 weeks prior. I went to the ER because I could not urintate. I was sent back home with a Foley catheter. But 4 hours later, I could no longer walk. I was so disoriented, weak, and my husband rushed me back to the ER.
I was in the hospital for 5 days, given IV solumedrol(steroids). I could not even lift MHD head up, let alone move my body. By the 5th day, I was walking with a walker only a few steps. My balance was off, my legs weak, my arms weak, I was numb from my neck down. Also, I had like double vision, I had to close one eye to see straight.
I went home with a walker, and extremely fatigued. My husband would help bathe me, and take me to the bathroom. (I started improving, didn’t need the catheter anymore, but kept track if my bladder was emptying.
I had severe memory issues, emotional issues, anxiety, panic, etc. I couldn’t remember ho to turn on the washing machine, or if I had already shampooed my hair. I also felt pins and needles, tremors, hearing issues, numbness, dizziness, cogintive issues, extreme, extreme fatigue.
My 3rd MRI has come back normal, thanks to God, and my very, very clean eating. I was on a strict diet that would maximize my central nervous system healing. Pretty much it consited of whole foods. Vegetables, leafy greens, grass fed beef, chicken, salmon. 2 pices of fruit a day.
No refined sugars, no gluten, or anything processed. If it had 5 or more ingredients, I wouldn’t eat it.
Today, I’m much better. My worst symptoms are fatigue, and it seems that my other symptoms
act up when I’m really fatigued. I start to feel the tingling, prickling, and heat, burning sensation on my back. My hands fall asleep at night, and sometimes my mind is unclear.
I hope this helps.