Acute Disseminated Encephalomyelitis (ADEM) Support Group

ADEM and Bell's Palsy

As most of you know, I was diagnosed with ADEM in 2016 and paralyzed from the collar bone down for close to 5 months. Last Friday, I fell and hit my head, by Saturday I was in the ER with paralysis of the face. They diagnosed me with Bell’s Palsy. I went to my neurologist on Monday when he ordered a battery of test and blood work. Any thoughts on the two being connected? I have not begun to heal from the Bell’s Palsy (although it has been less than a week). I am on steroids and anti-viral meds. I have to say that this is beginning to be very depressing. Between the COVID lock down, having ADEM and Bell’s Palsy, I am starting to become rather hopeless. It seems like every time I start to stand up, I get knocked back down again.

Hi Ronnica,

The research states it s usually due to respiratory infection and/ or diabetes. I am not one to cancel out the fact that it could be from trauma to the region of the brain that does the task of muscle movements. If i were you i would inspect the first ADEM MRI. If a certain region of the brain was attacked by ADEM and the concussion has caused issues in the same region that could equate to plausible reasons for the muscle issues. The question, is this a temporary setback due to inflammation or is there a progressive matter to deal with. i think a lot of us are down in the dumps, but keep trying. Those who can take all the… poop… life dishes out are strong enough to rule it.