My 13 years old girl, dx’ed with severe ADEM (turned to Recurring ADEM a few months later from new lesions on brain. and spine), 7 years ago. The past 14 months she’s been dealing with extreme stomach pains, as well as coming/going pain in pelvic area. This pain is a daily thing. They have tried to figure it out, but still she suffers from it. The only thing that helps (but only takes so much pain away) is to lie on her side in bed, and completely relax. She’s on Gabapentin for nervepain, Magnesium, Zink, Vitamins and Turmeric, but nothing seem to better the stomach or pelvic pain. She’s been tested for celiac, gluten, lactose intolerance, IBS, different gastro-illnesses, other allergies/intolerances, and anxiety, but no answer yet. Stress tends to make it worse.
Have any of any experience with this? Any medicines you’ve found to help? I’m trying to find answers for her as this is taking a toll on her, and influencing her quality of life so much. Thank you in advance.