My sister was diagnosed with ADEM about 3 weeks ago. She is 18 years old and fully paralyzed when she was diagnosed. She couldn’t talk and see at that time. She was moved on ventilator immediately.
She was initially treated with ceteroids but no progress. Then, she was given 7 plasma exchange after that she could respond with eyes in the form of YES and NO.
Then, 5 sessions of IVIGs of dosage 0.4g/kg were administered for 5 consecutive days. Now she can only move her lips and try to talk. But after 3 weeks of treatment she is still on ventilator. Doctors said they couldn’t predict any future. They will wait and see after IVIGs.
Can anyone know what are the chances of recovery? Any personal experiences.