My son is 2 1/2 and had a cold with a one day fever 6 weeks ago. One month ago he began having severe head/ear pains which lasted 10 sec. They progressed in number as a few days went by. He was cleared by an ENT and had negative sinus x-rays. He began having increasing neurological symptoms and his gait began to deteriorate. He had a brain and spine MRI which was clear. He began showing some signs of improvement 2 weeks ago but then all symptoms came back and his gait is worse. We have seen multiple pediatricians and neurologists. One Dr. suggested ADEM but the neurologist dismissed it because his MRI was clear. We are considering a spinal tap next week. He has all the symptoms of ADEM but his MRI is throwing us off.
Has anyone else had an initial MRI that was clear? His MRI was done 1 week into symptoms which compared to many people are mild. Thank you so much for helping me navigate this.