Diagnosed January 2018
My daughter was diagnosed January 26,2018 but fell sick December 26,2017 took them a while to figure out what was wrong with her! Since being diagnosed and discharged from the hospital February 2018 she has had 8 hospital visits with flare ups almost one a month seems to be about a week after ivig treatment (she gets treatment every two weeks) her symptoms usually involve clumpysness, blurred vision, vomiting, headache, eye pain, fevers of over 100, seems to be the same symptoms every time. They just keep giving her more treatments and more ivig treatments every time she ends back in the hospital! It’s very frustrating to keep medicating my child and not have answers why she keeps getting so many flare ups every three weeks. Wondering if anyone has had flare ups this often and if any one has had any other treatments done or has any information to share with me?!