I am new to this forum. My Son Matthew got diagnosed with ADEM in March 2018 but his attack occured in December. He has now completed a 3 month course of Prednisolone. We were warned of the side effects and we try to managed the situation as best as we could. However, we have noticed no improvement diring the tapering period or now that he has stopped. It is actually quite the opposite. He had irrational outbust of anger, is constantly sad or distressed and it is getting out of control. My 6 years old tell us he wants to die, which is the most hurtful thing i have ever heard.
I would appreciate any help and suggestion on how to best react and manage the situation.