My name is Mark, 25 year old Belgian guy. I was diagnosed with ADEM in the summer of 2013. I now suffer from moodswitches, short-term memoryloss, bad hearing, very impulsive behavior, personalitychanges and depression. I struggled the last years with all these things. I never really though about the fact that it could have been related to ADEM. Doctors never warned me or said anything similar like that to me.
I never searched for a cause, I just though “This is me! I’m in my adulthood, just having a though time finding my place here!”. Well… since the start of this year I realised this could be related to my ADEM history.
I’m going through a very dark period now, I’ve never been so deep. My depression is taking over my life. I broke up with my girlfriend and I gave up my job as a Project Engineer… I go to a psychiatrist since short. I don’t see the point of anything anymore. Well… almost anything…
As a graduated engineer, I’m used to and driven to find a solution to problems. Therefor I first need to examine the problem in detail. The set-up: “What are the mental and physical long-term effects of ADEM and what is their cause?”
So since short I started to do some research about ADEM and long-term effects together with a friend of mine (an experienced doctor). He’s interrested and wants to help me with this.
The first thing I really need, are references. That’s why I started this topic (the set-up will be similar like LauraK topic “About ADEM” (thanks LauraK for the idea!)). This research has been set up for ADEM diagnosed children as well as for ADEM diagnosed adults.
So if you would be so kind to take a bit of time and write down your experiences with the long-term effects of ADEM. Mental effects as well as physical effects. I would appreciate this A LOT. Thanks in advance.
- The date you (or a loved one) got diagnosed with ADEM
- First physical and mental symptoms.
- Period of hospitalization
- Period of recovery
- Long-term effects (mental and physical) => Don’t hold yourself writings things.