My 1 year old daughter was diagnosed with ADEM and also TM since it did not affect her brain too much. Demyelination of her spinal cord was from the cerebrospinal junction to T10. The onset of paralysis began 05/26/15 with IVIG and high dose steroid beginning on 05/30/15. She could no longer walk, crawl or sit unassisted and was loosing the ability to open her hands to even hold a bottle. After treatment in the hospital she regained the ability to open her hands but that was about it. We were discharged from the hospital on 06/06/15.
On 06/19/15 we began hyperbaric oxygen chamber treatments (HBOT) at 1.5 atmosphere for about an 1 1/2 hours and also acupuncture. She has since had 3 HBOT treatments and 1 acupuncture treatment. After her second HBOT treatment and 1 day after the acupuncture she stood up while assisted on 06/23/15. She did not wince or cry in pain, her feet flat on the floor, legs somewhat bent and not hyper-extended. She had a big smile on her face as she looked up at me while standing. It was amazing! After her 3rd HBOT treatment she is now crawling! All of this taking place approximately 30 days after the onset of paralysis.
We don't know if it is just her body repairing itself fast because she is so young, the HBOT treatment or acupuncture helping her recover so quickly and I don't think we will ever really know but something is working and working well. She still has a long way to go in her recovery and we will need to see if she has any residual side effects from this disease. But we won't know until she is older and can communicate with us.
We don't know why this happened to our daughter and if there was a reason maybe it was to help others in there recovery and that HBOT treatments are a viable option of alternative therapy to try in their recovery from ADEM or TM.
Has anyone else tried HBOT or acupuncture in their recovery from ADEM or TM? If you have what has been your results?