I was released from the hospital the day before my 37th birthday. I was diagnosed with ADEM and had to stay for 8 days while receiving two different treatments (Steroids/IVIG). Honestly, I'm beyond confused about this disease and I'm left with uncertainty about my future. Here's a little bio about me.
I'm a healthy, active person who is conscious about what she eats and tries to avoid stress. I take my vitamins, drinks a green smoothies day, doesn't like fast food, and lives a really simple life with her boyfriend and cat. I barely get sick and when I do, I'm pretty good at recovering in a day or two. The last time I went to see a doctor was 15 years ago, until recently I got a full check up. Results came back - Perfectly healthy. I do suffer from depression and anxiety, but I do not take medication for it. There are threes vices I had - LOVES cheese (ate lots of it), I used to consume 3 cups of coffee a day and smoked - I quit all three vices about a month ago.
So how did I get ADEM?
October 30 - Had lots of stress at work (LOTS)
November 3 - Had a panic attack - felt a little sick
November 7 - family came over to visit (My niece had just gotten over a cold)
three days later - I got sick
November 18 - got bronchitis
November 19 - quit smoking
Thanksgiving week - Started to feel good, but noticed some weird things.
Vision started to get blurry followed by: dizziness in the morning, confused at times (felt almost lost)
Woke up one morning with my pants wet, noticed later that week that my pants would be wet while I was sitting at my desk, but I didn't feel myself peeing. Had trouble swallowing, it was more like a delay. (I had to think actually think about swallowing) My mouth would get really watery (lots of saliva).
December 8 - I was having difficulty speaking, couldn't write a sentence or an email. I kept asking my coworkers to help me.
December 10- Couldn't speak at all, it felt like my tongue was stuck. Went to the emergency hospital and was diagnosed with ADEM.
I'm having issues concentrating, writing sentences, reading for long period of time, reading comprehension, and memory.
I'm just happy to be alive, but still worry about another possible future attack.