Unless you have been through adem no one understands what were going through and the fatigue and frustration we have. How do you make people understand?
It is an uphill battle sometimes, Vicky. My theory is that people don't want to understand things that are frightening sometimes. They don't want to think that lives can turn upside down and that nothing is under control. I'm glad you have this group, so at least you know there is a place where you are understood.
Some members have found that The Spoon Theory can help people make sense of chronic illness: http://www.butyoudontlooksick.com/wpress/articles/written-by-christine/the-spoon-theory/
I hope it helps.