My husband has been diagnosed with ADEM and possible bacterial meningitis. Three weeks ago he had flu symptoms, chills, aches, fever. Went to urgent care, course of tamiflu and cipro (antibiotic). Last week he went to his primary care, as he still had a bad cough. Dr. Told him he had early stages of pneumonia, gave him z pack and cough syrup with codeine, and Tylenol 3. On Monday, December 21 Andi went to the ER complaining of a severe headache. CT scan was normal so they gave him decongestants and sent him home 5 hrs later. Next day, Tuesday 12/22 he asked me to leave work and pick him up for ER. When I got home, he couldn’t walk straight or steadily. In the ER he had nystagmus in both eyes, slurred speech, weakness. Drs did a spinal tap and admitted him to critical care started treating with high dose of antibiotics as spinal tap showed elevated white blood cells. MRI done on 12/23 determined ADEM. Started high dose steroids on 12/24. Meanwhile I was working with insurance and hospitals for a transfer to a better, larger hospital that had more experience with ADEM. We were finally transferred to university of Michigan on 12/26. He showed no signs of improvement and we had planned to start plasmapheresis on 12/28. Tonight I left for a few hours to be with our son, who is 2.5 and came back to find that he was panting, breathing rapidly and had s very elevated pulse. He had a wet sounding breathing the entire time that he has been sick but X-ray on 12/26 was clear. They had a rapid response team come to him one hour ago, and he is now in the Neuro ICU being intubated.
I’m loosing my mind with worry. My husband is 37 years old and healthy. Please give me some hope. Please pray for us.