I’m glad you’ve found a medicine that helps, but I encourage you to ask for Physical Therapy for this (or ANYTHING) you’re going through.
I’ve been to occupational therapy (to help with hand coordination), PT to help with walking and balance (although that was WAY to early in recovery…I probably would’ve done better without this one at this time), cognitive therapy to help with planning, word-finding and other frustrating things in life (HELPED SO MUCH!) and now PT for a spastic shoulder and PT for pelvic floor support.
I’m four years in and doing better, but officially (by gov’t decree - ridiculous how long this has taken) disabled. These two PTs I’m doing now are helping. I wish I’d mentioned these symptoms a lot sooner, but better late than never.
I’m also going to an acupuncturist recommended by my neurologist for pain management. It’s helping tremendously.
I avoided taking meds because so many had their own side effects, and I wanted to be aware what was happening with me. Besides one of my residuals from ADEM is debilitating headaches, so about once a month I’m on strong meds for that.
Anyway, please ask us or ask your doctor if you’ve got anything weird going on. Well, it’s all weird. So many odd symptoms with this but we’re here to ask if you want to. Or you can privately message one of us if you’d like.
Best to all, LauraK