Was reading a few of your comments above and wanted to respond where I could. I was diagnosed at 35 years old with many of the problems that you guys have mentioned above - slurred speech, double vision (the worst!), complete urinary retention, lost my ability to walk (any lower body functions) - those are just some of the highlights.
To respond to some of your comments:
Lynn - I, like everyone else, have been left with residuals or disabilities, if you prefer, due to nerve damage - there is a way to reverse this process (or at least make it never get worse). I’m excited to read more on your story.
Ronnica - Worst part: having to be really cautious right now and having permanent nerve damage! - Same Ronnica as Lynn - I went the Functional Medicine route and have gradually improved (doesn’t happen overnight) over the past 3 years. There is a reason why we got this, and there is a way to calm your fears on anything permanent.
Littleman3 - a month in the hospital had to be a blast!! Congrats on not having any permanent damage! Was there anything you changed in your life to be able to achieve this result?
Thanks Everyone - You guys are all rare specimens. To put into perspective, Adult ADEM happens in approximately 1 out of 1,000,000 adults (who’s really counting at that point). If an average person meets 10,000 people in a lifetime, then it will take around 100 lifetimes to meet 1 of you!!
Matt - Oklahoma City