It’s been awhile, and I thought I’d jump on and see how everyone is doing?
I’m doing better I think. My disability hearing came and went, and 3 months later (although I’ve been approved), I still have no funds, and the Social Security website says it’ll be end of December before I start getting any. That will be one month shy of 4 years of my ADEM attack. Talk about moving at the speed of molasses in winter!
I watched a show by Dr. Daniel Amen who has a new book coming out called “The Brain Warrior’s Way: Ignite Your Energy and Focus, Attack Illness and Aging, Transform Pain into Purpose.” I’ve found his first few books at the library, and I’m on the waiting list for the new one once it’s released this week. Of course it talks about diet, attitude and exercise as crucial to brain health - no surprise there - but I thought it worth a look-see.
I’m also stopping my pelvic floor support physical therapy (which is to help with difficulty urinating and - sorry to be blunt - sexual dysfunction), and I’m going to start Pilates in a week or so. I feel so weak, and both my physical therapists (still going to one for neck and shoulder spasms) tell me that strengthening the “core” is important. So… I’ll keep you posted. The Pilates place I found is run by to Registered Nurses, so that’s a plus.
Still taking supplements: Biotin, ALA (alpha Lipoic Acid), Vitamins D and B-complex and Omega 3s. I think they help. But here in the midwest we’re leading into winter, so my mood is droopy because of the shortened sun/days already.
I have to say I’m feeling very disappointed in general. My husband was supposed to be retiring this year, but now he cannot because of my health and our finances. The disability funds from Social Security are pitifully low considering my former salary, and all I can think is that I must get better just so we can afford to live!
Okay - I’ve rambled enough. Anyone else want to jump in?
Blessings and healing to everyone!